This site is intended for US healthcare professionals only For Patients
This site is intended for US healthcare professionals only For Patients
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HELPFUL TOOLS & RESOURCES
Explore this list of tools to help you communicate the importance of understanding uncontrolled generalized myasthenia gravis (gMG) and monitoring patients throughout their disease experience. Check back often as new resources are added, and sign up for updates.
DOWNLOADS
The resources below can be used to help support you and your patients.
HCP BROCHURE
A reference for healthcare professionals who are assessing patients for uncontrolled gMG.
PATIENT PROFILES
A tool to help you assess uncontrolled disease in hypothetical patients.
MGFA SURVEY INFOGRAPHIC
An overview of patients’ thoughts on living with gMG.
MG PATIENT EXPERIENCES POSTER
Explore the lived experiences of patients with gMG.
RESOURCES FOR YOUR PATIENTS
DOCTOR DISCUSSION GUIDE
A tool to help patients share their experiences with their doctor.
CAREGIVER BROCHURE
A guide for caregivers to help them understand gMG and how to support their loved ones.
PATIENT BROCHURE
A brochure developed to help patients living with gMG understand the disease.
PATIENT JOURNAL
A journal to help patients track their symptoms over time.
VIDEOS
See how uncontrolled gMG affects patients living with the condition.
HEAR FROM PATIENTS LIVING WITH gMG
Watch videos from Dale and Greg, the gMG ambassadors. See their daily struggles and learn how they cope with symptoms and make modifications.
LINKS
Helpful resources that may provide additional information for patients and their caregivers.
Cutter G, Xin H, Aban I, et al. Cross-sectional analysis of the Myasthenia Gravis Patient Registry: disability and treatment. Muscle Nerve. 2019;60(6):707-715.
Tran C, Biswas A, Mendoza M, Katzberg H, Bril V, Barnett C. Performance of different criteria for refractory myasthenia gravis. Eur J Neurol. 2021;28(4):1375-1384.
Petersson M, Feresiadou A, Jons D, et al. Patient-reported symptom severity in a nationwide myasthenia gravis cohort. Neurology. 2021;97:e1382-e1391.
Grob D, Brunner N, Namba T, Pagala M. Lifetime course of myasthenia gravis. Muscle Nerve. 2008;37(2):141-149.
Silva, P. MG patients satisfied with treatment, but quality of life could be better, US survey shows. Myasthenia Gravis News. June 17, 2021. Accessed April 14, 2022. https://myastheniagravisnews.com/news-posts/2021/06/17/mg-patients-want-better-quality-of-life-us- survey-shows/?cn-reloaded=1
Mendoza M, Tran C, Bril V, Katzberg HD, Barnett C. Patient-acceptable symptom states in myasthenia gravis. Neurology. 2020;95(12):e1617-e1628.
Xin H, Harris LA, Aban IB, Cutter G. Examining the impact of refractory myasthenia gravis on healthcare resource utilization in the United States: analysis of a Myasthenia Gravis Foundation of America patient registry sample. J Clin Neurol. 2019;15(3):376-385.
Lee I, Kaminkski H, McPherson T, et al. Gender differences in prednisone adverse effects Survey result from the MG registry. Neurol Neuroimmunol Neuroinflamm. 2018; 5:e507.
Werneck LC, Scola RH, Germiniani FM, Comerlato EA, Cunha FM. Myasthenic crisis: report of 24 cases. Arq Neuropsiquiatr. 2002;60(3-A):519-526.
Andersen L, Jakobsson A, Revsbech, K, Vissing J. Causes of symptom dissatisfaction in patients with generalized myasthenia gravis. J Neurol. Published online November 21, 2021. doi:10.1007/s00415-021-10902-1
Baggi F, Andreetta F, Maggi L, et al. Complete stable remission and autoantibody specificity in myasthenia gravis. Neurology. 2013;80(2):188-195.
Imai T, Utsugisawa K, Murai H, et al. Oral corticosteroid dosing regimen and long-term prognosis in generalised myasthenia gravis: a multicentre cross-sectional study in Japan. J Neurol Neurosurg Psychiatry. 2018;89(5):513-517.
Kaminski HJ, Kusner LL. Myasthenia Gravis and Related Disorders. 3rd ed. Humana Press. 2018.
Blum S, Lee D, Gillis D, McEniery DF, Reddel S, McCombe P. Clinical features and impact of myasthenia gravis disease in Australian patients. J Clin Neurosci. 2015;22(7):1164-1169.
Anil R, Kumar A, Alaparthi S, et al. Exploring outcomes and characteristics of myasthenia gravis: rationale, aims and design of registry–the EXPLORE-MG registry. J Neurol Sci. 2020;414:116830.
Lindstrom J, Seybold M, Lennon V, et al. Antibody to acetylcholine receptor in myasthenia gravis. Neurology. 1976;26:1054-1059.
Vincent A, Newson-Davis J. Acetylcholine receptor antibody as a diagnostic test for myasthenia gravis: results in 153 validated cases and 2967 diagnostic assays. J Neurol Neurosurg Psychiatry. 1985;48:1246-1252.
Burden SJ, Yumoto N, Zhang W. The role of MuSK in synapse formation and neuromuscular disease. Cold Spring Harb Perspect Biol. 2013;5(5):a009167.
Nagane Y, Murai H, Imai T, et al. Social disadvantages associated with myasthenia gravis and its treatment: a multicentre cross-sectional study. BMJ Open. 2017;7(2):e013278.
Nowak RJ. Myasthenia gravis: challenges and burdens of disease. Neurology Reviews. March 2018. Accessed April 2022. https://www.neurologyreviews-digital.com/neurologyreviews/nord_supplement_0318/MobilePagedArticle.action articleId=1361082#articleId1361082
The CIE. The cost to patients and the community of Myasthenia Gravis. Centre for International Economics; November 2013. Accessed May 1, 2022. http://www.thecie.com.au/wp-content/uploads/2014/06/Final-report_Economic-Impact-of-Myasthenia-Gravis-08112013.pdf
Twork S, Wiesmeth S, Klewer J, Pöhlau D, Kugler J. Quality of life and life circumstances in German myasthenia gravis patients. Health Qual Life Outcomes. 2010;8:129.
Ruiter A, Verschuuren J, Tannemaat M. Fatigue in patients with myasthenia gravis. A systematic review of the literature. Neuromuscular Disorders. 2020;30(8):631-639.
Stewart SB, Roberston KR, Johnson KM, Howard JF Jr. The prevalence of depression in myasthenia gravis. J Clin Neuromusc Dis. 2007;8(3):111-115.
Harris L, Aban IB, Xin H, Cutter G. Employment in refractory myasthenia gravis: A Myasthenia Gravis Foundation of America Registry analysis. Muscle Nerve. 2019;60(6):700-706.
Mantegazza R, Antozzi C. When myasthenia gravis is deemed refractory: clinical signposts and treatment strategies. Ther Adv Neurol Disord. 2018;11:1756285617749134.
Gilhus NE. Myasthenia gravis. N Engl J Med. 2016;375(26):2570-2581.
Farmakidis C, Pasnoor M, Dimachkie MM, Barohn RJ. Treatment of myasthenia gravis. Neurol Clin. 2018;36(2):311-337.
Bacci ED, Coyne KS, Poon JL, Harris L, Boscoe AN. Understanding side effects of therapy for myasthenia gravis and their impact on daily life. BMC Neurol. 2019;19(1):335.