AN IMPORTANT DISCUSSION
Patients make modifications frequently to help themselves cope with the daily challenges of gMG. These challenges may include walking, daily chores, and even eating.
Communicating with patients about the modifications they make in response to their symptoms can help you stay on top of their current condition.
During regular appointments with your patients, the following talking points may help you see the true burden of their gMG:
- Discuss how they navigate their daily lives, including any modifications made.
- Probe deeper into specific symptoms, such as muscle fatigue or generalized fatigue, that interrupt daily life. Be on the lookout for the impact of gMG on social life, family or work responsibilities, and general depression or anxiety.
- Review or conduct an MG-ADL questionnaire with your patients. Ask if they track their MG-ADL scores from week to week using the gMG Patient Journal.
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